The Origin of the “WTF!” Name
Some names have no meaning and some names mean absolutely everything to and about the bearer of the name. Our name falls into the latter…
Some names have no meaning and some names mean absolutely everything to and about the bearer of the name. Our name falls into the latter…
As I sit down to update my journey, I am crushed that we’re still figuring things out (and nothing really was as I was initially…
Colton had just finished his Chiari Decompression. He was headache free and doing great! His neurosurgeon came to me and said, “This is a genetic…
“But you look so good” is what people usually say when they find out that I struggle with debilitating chronic illnesses. It is true- I…
“We need to perform surgery on your brain, and we need to do it now!” What would you do if someone said that to you?…
When I first started getting hit with symptoms, I was a divorced, single mother of three amazing kids; responsible not only to provide for them…
I was what you would consider a “typical developing child” growing up, I did not have any health issues and was able to enjoy much…
During my pregnancy I remember being very unwell, writing in my journal, “there is something wrong with pregnancy, I know something is wrong with my…
I had a rough journey with these conditions and I am sharing it to help show how complex we can be and how much we…
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