General Information
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Oropharyngeal dysphagia
Oropharyngeal dysphagia = when your upper esophageal sphincter, pharynx, larynx, and/or tongue fail to coordinate properly when trying to swallow. Can occur when one or more of the following nerves is damaged or compressed: facial nerve (CN VII), glossopharyngeal nerve (CN IX), vagus nerve (CN X), and hypoglossal nerve (CN XII). Now that you know…
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NS Specialist List (Admin Resource)
Neurosurgeons on this list are ones that have focused much of their practice on Chiari Malformation and Comorbid Conditions. Not everybody will agree with who is on this list and that’s okay. While we do encourage members to share THEIR OWN EXPERIENCES WITH THEIR DOCTORS, we DO NOT ALLOW DOCTOR BASHING in our groups! The…
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September Is Chiari Awareness Month
It’s hard having a chronic illness that isn’t all that understood. As patients, we have to fight on absolutely every level! Before diagnoses, we fight for someone to hear us when: Around diagnoses, we fight to: When our doctors continue to dismiss our symptoms, we need our friends and families to understand:
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![The Important Questions to Ask Your Neurosurgeon [Revised]](https://dev.chiaribridges.org/wp-content/uploads/2023/09/MRI-doctor_AS505903501.jpg)
The Important Questions to Ask Your Neurosurgeon [Revised]
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in Acquired Chiari Malformation, Advocacy Resources, Atlantoaxial Instability, Comorbidities, Craniocervical Instability, Ehlers-Danlos Syndromes, Empty Sella Syndrome, General Information, Heritable Disorders of Connective Tissue, Hydrocephalus, Idiopathic Intracranial Hypertension, Intracranial Hypertension, Intracranial Hypotension, Tethered Cord SyndromeMost Chiarians go to see a surgeon with an expectation of them being knowledgeable in their field. However, while they might be a neurosurgeon, their knowledge of Chiari and its comorbid/pathological conditions might not rank high in their practice. Make the most of your initial appointment by interviewing them and what they really know about…
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Get Moving: One Small Goal At A Time
Tired of your doctors telling you, “If you just exercised, you’d feel better!”? Well, they may not be all wrong. Just hear me out! The truth is we all just want to feel better and fight to get as much of our lives back as we can. That is never going to be as easy…
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WTF! Online Support Group Meetings
Ever feel alone in all you’re facing? It’s one thing to read what people are going through, but to see them as they share how they’re going through the same struggles that you are can be game-changing! Starting in December, the tribe will be hosting online support meetings on the first and third Tuesdays of…
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From The Inside Out – Understanding Syringomyelia & Syringobulbia
WHEN A DOCTOR TALKS ABOUT THE “MOST SERIOUS” COMPLICATIONS SURROUNDING CHIARI MALFORMATION, THEY USUALLY SPEAK OF PARALYSIS OR DEATH. WHILE BOTH OF THESE ARE FAR LESS COMMON THAN THE ARRAY OF OTHER SYMPTOMS AND COMPLICATIONS, THEY BOTH CAN INVOLVE THAT OF A SYRINX. The word syrinx (seer-inks), plural syringes (seer-en-geez), means cavity or cyst. Syringomyelia…
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Overview: Chiari Comorbidities & Etiological/Pathological Cofactors
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in Acquired Chiari Malformation, Atlantoaxial Instability, Comorbidities, Craniocervical Instability, Degenerative Disc Disease, Dysautonomia, Ehlers-Danlos Syndromes, Etiological Co-Factors, General Information, Heritable Disorders of Connective Tissue, Intracranial Hypertension, Intracranial Hypotension, Syringomyelia, Tethered Cord SyndromeWhen you start to educate yourself on a condition like Chiari, your vocabulary will be challenged. Most of us study with a medical journal article opened in one tab and medical dictionary in the next. Amongst all the medical terminology you will tackle, there are probably a few terms as important to your understanding of…
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Commonly Shared Links to Chiari Bridges – An Admins Resource
HOMEPAGE: <https://chiaribridges.org/> (go to article) ABOUT CHIARI (TAB) Understanding Your Head and Neck Pain: <https://chiaribridges.org/understanding-your-head-and-neck-pain/> (go to article) Overview: Chiari Malformation [Revised]: <https://chiaribridges.org/chiari-malformation/> (go to article) What’s In A Name? An Expansive Review of the Name and Definition of Chiari Malformation: <https://chiaribridges.org/whats-in-a-name-chiari-malformation/> (go to article) One Painful Fight – Get Ready To Rumble!!!: <https://chiaribridges.org/painful-fight-get-ready-rumble/>…