Expressive Writings
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This Disease Called A Blessing
They keep telling me I’m a blessing. That I’m lucky to be alive. That although I’m sick I’m blessed to be here every day. I’m blessed to spend time with my kids. And although people tell me this everyday like it is some sort of affirmation, I don’t feel blessed. I don’t feel blessed when…
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Breaking The Cycle
I’m in an abusive relationship. It’s not a romantic one at least, not in the traditional sense of the word. When I fell in love with her, she reminded me of a goddess. She was beautiful and kind. She never took no for an answer. She was unstoppable. She was an inspiration. To me and…
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DEAR FAMILY (***Revised: Clean Version***)
FOR ALL MY NON-CHIARI FAMILY MEMBERS AND FRIENDS… I really NEED you to listen to this and just try to understand! I know there’s absolutely NOTHING I can say to help you understand the pain that I go through; what it feels like to have pain all the time, in places that I didn’t even…
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DEAR FAMILY (***Strong Language***)
FOR ALL MY NON-CHIARI FAMILY MEMBERS AND FRIENDS… I’m going to cuss, but I really NEED you to listen to this and just try to understand: I know there’s absolutely NOTHING I can say to help you understand the pain that I go through; what it feels like to have pain all the time, in…
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The Eric Michael Nault Story – A Chiari Angel’s Fight
During my pregnancy I remember being very unwell, writing in my journal, “there is something wrong with pregnancy, I know something is wrong with my baby”, at only 10 weeks gestation; proving that a mother always knows. At around 30 weeks gestation my unborn baby started to get chronic hiccups followed by trembling, lasting several…
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The Ryan & Zona McGee Story – A Chiari Angel’s Fight
Zona McGee was blessed with a vibrant and beautiful little boy on July 2nd, 1993. She named him Ryan Andrew and fell in love with his sweet face the second she first held him. He looked just like her! Her husband, Kevin, and daughter Crystal, eight-years old at the time, were over the moon as well.…