Poetry
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The Prayer of An EDS/Chiari/Comorbid Patient
As we lift up a warrior fighting EDS, Chiari, and/or Comorbids,We are believing You for: Knowledgeable doctors/surgeonsWith hearts for the patients that are trusting themEars to hear themAnd a willingness to unlearn and relearn CSF leaks to sealCranial masses to disappearNarrowed venous structures to widenAnd cranial pressures restored to normal Sticky…
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More Than a Headache – A Warrior’s Poem
It started with a headache, But it didn’t go away. Soon I would find out That it was here to stay. They all say, ‘the sun’s out, go out and get some air!’ But my wobbly legs ache, not to mention every strand of my hair. Every Doctor says, ‘You look just fine! It must…
