Inspirational
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Struggling Through the Holidays
‘Twas the night before Christmas and despite the sleeping spouse, there was still one stirring in the Chiarian’s house. The stockings were hung by the chimney with care, as all hoped their sick loved one would be able to be there. The family was nestled all snug in their beds, while visions of disappointment danced…
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Christmas Presence
Making homemade stockings and cutting flowers for wreaths. Baking treats and devouring them with hot cocoa by the tree that we spent hours decorating. Shopping for just the right gifts and wrapping them meticulously, so those I love know just how special they are. I remember all the traditions that we did together as a…
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Holiday Hug
The week before Christmas in my home is filled with gift wrapping, cookie baking, dogs barking, people talking (loudly)… On a normal day, we feel the pain in the stiff neck, the backache, the headache, (the list could go on). When we are surrounded by stressors, they can take a toll on a person, especially…
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The Prayer of An EDS/Chiari/Comorbid Patient
As we lift up a warrior fighting EDS, Chiari, and/or Comorbids,We are believing You for: Knowledgeable doctors/surgeonsWith hearts for the patients that are trusting themEars to hear themAnd a willingness to unlearn and relearn CSF leaks to sealCranial masses to disappearNarrowed venous structures to widenAnd cranial pressures restored to normal Sticky…
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More Than a Headache – A Warrior’s Poem
It started with a headache, But it didn’t go away. Soon I would find out That it was here to stay. They all say, ‘the sun’s out, go out and get some air!’ But my wobbly legs ache, not to mention every strand of my hair. Every Doctor says, ‘You look just fine! It must…
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A Mother’s Story
Today is 11th April, 2019. Spring is in the air, yet I struggle to appreciate its presence. My daughters are at school, my son is at home in bed yet again. Like so many other days he is unable to get up. My son is 19 years old and looks just like any other 19…
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My Husband, My Caretaker, My Hero
Like any marriage, we’ve had our rocky moments. We’ve both showed our ugly sides more than we like to admit. I’m not sure when he changed, but somehow along the way in our 27 years of marriage, my husband morphed into this amazing man who is EXACTLY what I need in every way! My husband…
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Breaking The Cycle
I’m in an abusive relationship. It’s not a romantic one at least, not in the traditional sense of the word. When I fell in love with her, she reminded me of a goddess. She was beautiful and kind. She never took no for an answer. She was unstoppable. She was an inspiration. To me and…