General Information
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Our Vision
Like most of us, when my symptoms started, I felt very alone. I was blessed to have family and friends that helped me through and cheered me on, but there was a part of the fight that only those directly going through it can understand. At that time, online support groups were far from what…
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The Chiari Malformation Ehlers-Danlos Connection
CHIARI (KEE-AR-EE) MALFORMATIONS ARE FAR FROM RARE, THEY ARE JUST RARELY UNDERSTOOD, EVEN BY MOST MEDICAL PROFESSIONALS. A CHIARI MALFORMATION EXISTS WHEN THE LOWEST PART OF THE HIND BRAIN (THE CEREBELLAR TONSILS) PROLAPSES INTO THE HOLE AT THE BOTTOM OF THE SKULL (FORAMEN MAGNUM), ENTERS THE SPINAL CANAL AND OBSTRUCTS THE FLOW OF CEREBROSPINAL FLUID…
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Overview: Complications Associated With A Chiari Decompression
From Intracranial Hypertension (formerly known as Pseudotumor Cerebri), Hydrocephalus, Tethered Cord Syndrome, to conditions related to the presence of a connective tissue disorder, such as Ehlers-Danlos Syndrome, the primary reason for post-decompression complications seen in the Chiari Patient Community continues to be largely related to undiagnosed and untreated comorbid conditions.
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One Painful Fight – Get Ready To Rumble!!!
“Make it stop!” “I can’t take this pain anymore!” How many times have you, or your loved one, cried out these very words? Pain from a Chiari headache can be brought on from the simplest of things – a sneeze, a cough, laughter, or bearing down when going to the bathroom. We never know when…
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The Diagnosis – Round One
One of the biggest hurdles a Chiari patient may face is that of simply being diagnosed. Some studies cite an average of 5 years between the onset of symptoms significant enough for a patient to seek medical care and the patient receiving an accurate diagnosis of Chiari Malformation. Sadly, however, online support groups and message…
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Overview: Chiari Treatment Options & Potential Pitfalls
Once diagnosed, you will usually be referred to a specialist (not a Chiari Specialist, but an everyday, run-of-the-mill neurologist or neurosurgeon). They tend to come in one of two types: Either they are very passive and just want to wait and see how bad it gets, or they are very pro-surgery and while they will…
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Suicide Prevention List – International & By State
International list of suicide hotline websites https://en.m.wikipedia.org/wiki/List_of_suicide_crisis_lines http://www.crisistextline.org United States Suicide Hotline numbers links http://www.suicide.org/suicide-hotlines.html Alabama http://www.suicide.org/hotlines/alabama-suicide-hotlines.html Alaska http://www.suicide.org/hotlines/alaska-suicide-hotlines.html Arizona http://www.suicide.org/hotlines/arizona-suicide-hotlines.html Arkansas http://www.suicide.org/hotlines/arkansas-suicide-hotlines.html California http://www.suicide.org/hotlines/california-suicide-hotlines.html Colorado http://www.suicide.org/hotlines/colorado-suicide-hotlines.html Connecticut http://www.suicide.org/hotlines/connecticut-suicide-hotlines.html Delaware http://www.suicide.org/hotlines/delaware-suicide-hotlines.html Florida http://www.suicide.org/hotlines/florida-suicide-hotlines.html Georgia http://www.suicide.org/hotlines/georgia-suicide-hotlines.html Hawaii http://www.suicide.org/hotlines/hawaii-suicide-hotlines.html Idaho http://www.suicide.org/hotlines/idaho-suicide-hotlines.html Illinois http://www.suicide.org/hotlines/illinois-suicide-hotlines.html …