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Walnut-Crusted Chicken Salad with Blueberry Balsamic Vinaigrette – “Anti-Inflammatory”
INGREDIENTS: Blueberry Balsamic Vinaigrette: ½ cup fresh blueberries ¼ cup aged balsamic vinegar 2 teaspoons honey ¼ cup avocado oil or light olive oil ¼ tsp sea salt ¼ tsp ground black pepper ¼ teaspoon onion powder ½ tablespoon whole grain Dijon mustard Walnut-Crusted Chicken:
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When A Chiari Woman Passes Away
When a Chiari woman passes away it changes so much for so many. It leaves a hole in the hearts of the Chiari community because, even as dysfunctional as we are sometimes, we know we’re all in this together! We know what it’s like to have conditions that so few understand, including our doctors. We…
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My Husband, My Caretaker, My Hero
Like any marriage, we’ve had our rocky moments. We’ve both showed our ugly sides more than we like to admit. I’m not sure when he changed, but somehow along the way in our 27 years of marriage, my husband morphed into this amazing man who is EXACTLY what I need in every way! My husband…
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This Disease Called A Blessing
They keep telling me I’m a blessing. That I’m lucky to be alive. That although I’m sick I’m blessed to be here every day. I’m blessed to spend time with my kids. And although people tell me this everyday like it is some sort of affirmation, I don’t feel blessed. I don’t feel blessed when…
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Breaking The Cycle
I’m in an abusive relationship. It’s not a romantic one at least, not in the traditional sense of the word. When I fell in love with her, she reminded me of a goddess. She was beautiful and kind. She never took no for an answer. She was unstoppable. She was an inspiration. To me and…
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Brain Under Pressure – Understanding Intracranial Hypertension [Archived]
INTRACRANIAL HYPERTENSION (IH) AND IDIOPATHIC INTRACRANIAL HYPERTENSION (IIH) ARE CONNECTED, BUT ARE NOT THE SAME THING AND THEREFORE SHOULD NOT BE USED INTERCHANGEABLY. Intracranial Hypertension (IH) means high pressure inside the skull. Intracranial Pressure (ICP) is measured in millimeters of mercury (mmHg). Most scholars agree that on average, “normal pressure” should be between 5-15 mmHg…
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Palliative Care: An Essential for EDS & Chiari Families
When I was first diagnosed with Chiari Malformation, I believed everything that my neurosurgeon told me. I was originally diagnosed with a Chiari 1 Malformation. I was told that it was congenital and due to my mother either using drugs or not getting proper prenatal care, which was crushing to hear, but not all that…
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Finding Hope In The Seemingly Hopeless Chiari Fight!
Despite the pain we face on a daily basis, that our doctors so often ignore… Despite the anger that builds towards a medical system that is relatively clueless about our conditions… Despite the frustrations we face when those we love fail to understand what we’re going through… … Despite it all, hope remains! There is…
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How Much Are You Worth?
When a person suffers from a chronic condition, we sometimes equate our value to how we feel. Chiari, Ehlers-Danlos, CSF Leaks, Chronic Fatigue Syndrome, etc. all cause pain. Sometimes we tend to carry that pain along with us as baggage. If we carry our self-value as related to pain, we are more likely to let…
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Overview: Chiari Malformation [Revised]
CHIARI MALFORMATIONS (PRONOUNCED: KEE-AH-REE) ARE STRUCTURAL DEFECTS IN WHICH THE CEREBELLUM, THE HIND PART OF THE BRAIN, DESCENDS BELOW THE FORAMEN MAGNUM INTO THE SPINAL CANAL. While Arnold Chiari Malformation (Type 2) was first identified in the late 19th century by the Austrian pathologist Hans Chiari, much of the current medical knowledge has developed since…