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The Mukti Ryan Story – A Chiari Warrior’s Journey
“But you look so good” is what people usually say when they find out that I struggle with debilitating chronic illnesses. It is true- I wear fashionable clothes, I do my hair, I put on makeup and I have a smile on my face. Underneath it all though, is someone who is trying to live…
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![Brain Under Pressure – A Guide to Understanding Intracranial Hypertension [Updated]](https://dev.chiaribridges.org/wp-content/uploads/2019/12/Woman_Up-with-headache_AS177290930.jpg)
Brain Under Pressure – A Guide to Understanding Intracranial Hypertension [Updated]
Left untreated, this high pressure creates a “pushing effect” towards the only natural escape at the base of the skull (the foramen magnum) and the cerebellar tonsils in the pathway are pushed through the foramen magnum.
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Spine Pulled Tight – A Guide to Understanding Tethered Cord Syndrome
TETHERED CORD SYNDROME (TCS) INVOLVES A STRETCHING OF THE SPINAL CORD, AND OFTEN YOUR MEDULLA OBLONGATA AS WELL, WHICH LEADS TO A HOST OF NEUROLOGICAL PROBLEMS. Before we talk about Tethered Cord Syndrome, let’s first talk about the anatomy associated with the spinal column (in layman’s terms). • The role of the vertebral column…
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![Overview: Chiari Comorbidities & Etiological/Pathological Cofactors [Revised]](https://dev.chiaribridges.org/wp-content/uploads/2020/12/DominoEffect_AdobeStock_107422335-copy.jpg)
Overview: Chiari Comorbidities & Etiological/Pathological Cofactors [Revised]
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in Acquired Chiari Malformation, Atlantoaxial Instability, Comorbidities, Craniocervical Instability, Degenerative Disc Disease, Dysautonomia, Ehlers-Danlos Syndromes, Etiological Co-Factors, General Information, Heritable Disorders of Connective Tissue, Intracranial Hypertension, Intracranial Hypotension, Syringomyelia, Tethered Cord SyndromeWhen you start to educate yourself on a condition like Chiari, your vocabulary will be challenged. Most of us study with a medical journal article opened in one tab and medical dictionary in the next. Amongst all the medical terminology you will tackle, there are probably a few terms as important to your understanding of…
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Petra Johansson’s berättelse – En chiari-krigares resa [Svensk Version]
“Vi måste operera din hjärna och det måste ske nu”! Vad gör du egentligen om någon säger så till dig? Hjärnan. Den där delen högst uppe som liksom är allt som du är. Någon måste skära i den och fixa något som är fel. Och att det finns ingen tid att tänka efter. Hur ska…
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![The Petra Johansson Story – A Chiari Warrior’s Journey [English Version]](https://dev.chiaribridges.org/wp-content/uploads/2019/11/Petra-Now2.jpg)
The Petra Johansson Story – A Chiari Warrior’s Journey [English Version]
“We need to perform surgery on your brain, and we need to do it now!” What would you do if someone said that to you? Your brain – that thing on the top of your head that is all that is you. Someone needs to cut into it and fix what is wrong and there…
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More Than a Headache – A Warrior’s Poem
It started with a headache, But it didn’t go away. Soon I would find out That it was here to stay. They all say, ‘the sun’s out, go out and get some air!’ But my wobbly legs ache, not to mention every strand of my hair. Every Doctor says, ‘You look just fine! It must…
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The Sarah Taylor Story – A Chiari Warrior’s Journey
When I first started getting hit with symptoms, I was a divorced, single mother of three amazing kids; responsible not only to provide for them but to see them through life, unscathed by life’s situations, and showing them that there was nothing that if they worked hard at something, nothing could hold them back. I…
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The Cameron Hallihan Story – A Chiari Warrior’s Journey
My son’s story started right from the moment he was born. I knew as soon as he tried to breastfeed that something was wrong. At that time, I didn’t know exactly what I was getting into. I figured he was aspirating like my first child. I took my brand-new baby home and tried to feed…
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A Mother’s Story
Today is 11th April, 2019. Spring is in the air, yet I struggle to appreciate its presence. My daughters are at school, my son is at home in bed yet again. Like so many other days he is unable to get up. My son is 19 years old and looks just like any other 19…