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Oropharyngeal dysphagia

Oropharyngeal dysphagia = when your upper esophageal sphincter, pharynx, larynx, and/or tongue fail to coordinate properly when trying to swallow. Can occur when one or more of the following nerves is damaged or compressed: facial nerve (CN VII), glossopharyngeal nerve (CN IX), vagus nerve (CN X), and hypoglossal nerve (CN XII). Now that you know…
The Origin of the “WTF!” Name

Some names have no meaning and some names mean absolutely everything to and about the bearer of the name. Our name falls into the latter category. Despite the more popular acronym, WTF! stands for Worth The Fight! The origins of our name began with someone that I love to the moon and back, who was struggling with depression. This…
Struggling Through the Holidays

‘Twas the night before Christmas and despite the sleeping spouse, there was still one stirring in the Chiarian’s house. The stockings were hung by the chimney with care, as all hoped their sick loved one would be able to be there. The family was nestled all snug in their beds, while visions of disappointment danced…
NS Specialist List (Admin Resource)

Neurosurgeons on this list are ones that have focused much of their practice on Chiari Malformation and Comorbid Conditions. Not everybody will agree with who is on this list and that’s okay. While we do encourage members to share THEIR OWN EXPERIENCES WITH THEIR DOCTORS, we DO NOT ALLOW DOCTOR BASHING in our groups! The…
Awareness Pumpkin 2023 Contestant 7: Summer and Darren (sister)

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Awareness Pumpkin 2023 Contestant 8: Johnny C.

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Awareness Pumpkin 2023 Contestant 6: Janneke B.

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Awareness Pumpkin 2023 Contestant 5: Diana F.

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Awareness Pumpkin 2023 Contestant 4: Connie W.

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Awareness Pumpkin 2023 Contestant 3: Erin B.

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