syringomyelia

  • The Emmalyn Freeze Story – A Chiari Warrior’s Journey (Updated)

    The Emmalyn Freeze Story – A Chiari Warrior’s Journey (Updated)

    Colton had just finished his Chiari Decompression. He was headache free and doing great! His neurosurgeon came to me and said, “This is a genetic disorder and Emmalyn should be checked.” Two weeks later I took Emmalyn into the Chicago area to be sedated for her first MRI of the brain and spine. Three hours…

  • Brain Under Pressure – A Guide to Understanding Intracranial Hypertension [Updated]

    Brain Under Pressure – A Guide to Understanding Intracranial Hypertension [Updated]

    Left untreated, this high pressure creates a “pushing effect” towards the only natural escape at the base of the skull (the foramen magnum) and the cerebellar tonsils in the pathway are pushed through the foramen magnum.

  • Spine Pulled Tight – A Guide to Understanding Tethered Cord Syndrome

    Spine Pulled Tight – A Guide to Understanding Tethered Cord Syndrome

    TETHERED CORD SYNDROME (TCS) INVOLVES A STRETCHING OF THE SPINAL CORD, AND OFTEN YOUR MEDULLA OBLONGATA AS WELL, WHICH LEADS TO A HOST OF NEUROLOGICAL PROBLEMS.   Before we talk about Tethered Cord Syndrome, let’s first talk about the anatomy associated with the spinal column (in layman’s terms). •  The role of the vertebral column…

  • The Sarah Taylor Story – A Chiari Warrior’s Journey

    The Sarah Taylor Story – A Chiari Warrior’s Journey

    When I first started getting hit with symptoms, I was a divorced, single mother of three amazing kids; responsible not only to provide for them but to see them through life, unscathed by life’s situations, and showing them that there was nothing that if they worked hard at something, nothing could hold them back. I…

  • Overview: Chiari Treatment Options & Potential Pitfalls

    Overview: Chiari Treatment Options & Potential Pitfalls

    Once diagnosed, you will usually be referred to a specialist (not a Chiari Specialist, but an everyday, run-of-the-mill neurologist or neurosurgeon). They tend to come in one of two types: Either they are very passive and just want to wait and see how bad it gets, or they are very pro-surgery and while they will…

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