CSF Leaks

  • The Emmalyn Freeze Story – A Chiari Warrior’s Journey (Updated)

    The Emmalyn Freeze Story – A Chiari Warrior’s Journey (Updated)

    Colton had just finished his Chiari Decompression. He was headache free and doing great! His neurosurgeon came to me and said, “This is a genetic disorder and Emmalyn should be checked.” Two weeks later I took Emmalyn into the Chicago area to be sedated for her first MRI of the brain and spine. Three hours…

  • The Denelle Crespo Story – A Chiari Warrior’s Journey

    The Denelle Crespo Story – A Chiari Warrior’s Journey

    I was what you would consider a “typical developing child” growing up, I did not have any health issues and was able to enjoy much of my childhood. My journey to finding answers in regard my health began at 15 years old, when I began rapidly losing my vision in my left eye. I dealt…

  • Overview: Chiari Treatment Options & Potential Pitfalls

    Overview: Chiari Treatment Options & Potential Pitfalls

    Once diagnosed, you will usually be referred to a specialist (not a Chiari Specialist, but an everyday, run-of-the-mill neurologist or neurosurgeon). They tend to come in one of two types: Either they are very passive and just want to wait and see how bad it gets, or they are very pro-surgery and while they will…

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