Acquired Chiari

  • The Michelle Cole Story – A Chiari Warrior’s Journey [UPDATED]

    The Michelle Cole Story – A Chiari Warrior’s Journey [UPDATED]

    As I sit down to update my journey, I am crushed that we’re still figuring things out (and nothing really was as I was initially told it would be), yet at the same time, I’m so thankful that we’re continuing to figure things out. Nobody should have to fight a fight like this (every symptom,…

  • The Emmalyn Freeze Story – A Chiari Warrior’s Journey (Updated)

    The Emmalyn Freeze Story – A Chiari Warrior’s Journey (Updated)

    Colton had just finished his Chiari Decompression. He was headache free and doing great! His neurosurgeon came to me and said, “This is a genetic disorder and Emmalyn should be checked.” Two weeks later I took Emmalyn into the Chicago area to be sedated for her first MRI of the brain and spine. Three hours…

  • Brain Under Pressure – A Guide to Understanding Intracranial Hypertension [Updated]

    Brain Under Pressure – A Guide to Understanding Intracranial Hypertension [Updated]

    Left untreated, this high pressure creates a “pushing effect” towards the only natural escape at the base of the skull (the foramen magnum) and the cerebellar tonsils in the pathway are pushed through the foramen magnum.

  • Spine Pulled Tight – A Guide to Understanding Tethered Cord Syndrome

    Spine Pulled Tight – A Guide to Understanding Tethered Cord Syndrome

    TETHERED CORD SYNDROME (TCS) INVOLVES A STRETCHING OF THE SPINAL CORD, AND OFTEN YOUR MEDULLA OBLONGATA AS WELL, WHICH LEADS TO A HOST OF NEUROLOGICAL PROBLEMS.   Before we talk about Tethered Cord Syndrome, let’s first talk about the anatomy associated with the spinal column (in layman’s terms). •  The role of the vertebral column…

  • A Mother’s Story

    A Mother’s Story

    Today is 11th April, 2019. Spring is in the air, yet I struggle to appreciate its presence. My daughters are at school, my son is at home in bed yet again. Like so many other days he is unable to get up. My son is 19 years old and looks just like any other 19…

  • Brain Under Pressure – Understanding Intracranial Hypertension [Archived]

    Brain Under Pressure – Understanding Intracranial Hypertension [Archived]

    INTRACRANIAL HYPERTENSION (IH) AND IDIOPATHIC INTRACRANIAL HYPERTENSION (IIH) ARE CONNECTED, BUT ARE NOT THE SAME THING AND THEREFORE SHOULD NOT BE USED INTERCHANGEABLY. Intracranial Hypertension (IH) means high pressure inside the skull. Intracranial Pressure (ICP) is measured in millimeters of mercury (mmHg). Most scholars agree that on average, “normal pressure” should be between 5-15 mmHg…

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