Chiari Bridges

Origin of the “WTF!” Name

WTF! stands for Worth The Fight! Some names have no meaning, and some names mean absolutely everything to and about the bearer of the name. Our name falls into the latter category.

WTF! Mission Statement: Why This? Why Now?

Worth The Fight (WTF!) has been on social media for many years now. With more than 9k members, we have found that it takes a determined community to bring about the changes that we need, and that REQUIRES our ability to openly discuss information pertinent to our condition(s).

Action is Necessary for Change!

We as Chiarians have learned the necessity of educating ourselves and helping one another. Our ability to do so has already revolutionized our fight at an individual level, but we need to be proactive in order to accomplish real change on a larger scale. From our right to competent medical care to our rights to proper pain management options, we cannot expect people to fight for our rights unless we are first willing to fight ourselves. Please stay tuned to this area with calls to action and updates. All of us need to come together so we CAN make a real difference! Individually we have small voices that are easy to dismiss, but together we are strong, loud, and fierce!

Censorship of Medical Research

Worth The Fight (WTF!) has been on social media for many years now. With more than 9k members, we have found that it takes a determined community to bring about the changes that we need, and that REQUIRES our ability to openly discuss information pertinent to our condition(s).

Free Access to Public Studies

Many don’t know this, but nearly every study that Chiari Bridges uses in researching topics that can help us as patients now come with a price tag. When the research behind the study is privately funded, that’s understandable, but when it’s being paid for with tax dollars, we shouldn’t have to pay to see what our dollars paid to find out! Let’s work together to try and change this!

Pain Control Rights (PCR)

We have a right to proper help with our pain! Some of us have lost rights in certain states and others are being threatened for the future loss of pain control options. Our rights as Chronic Pain Patients need to be a focus for all of us. Let’s help our legislators understand what we face and make our voices heard!

Cannabis Legislation

Recent studies have indicated the intricate role between neuropathic pain and the endocannabinoid system. With our doctors’ hands being tied in helping us with pain control, some EDS/Chiari/Comorbid patients are finding relief with medical cannabis (CBD/THC). Let’s work together to help every patient have as many options as possible, because our legislators don’t understand our pain, we need to help them understand.

Non-Professional Opinions

We ARE NOT medical professionals (we usually say that when we respond and we have disclaimers everywhere, letting everyone know that the information shared in our group should NEVER be taken as a substitute for medical advice). Since we tend to be less dismissive than our doctors, there is not much harm that can come from it other than us being the thorn in the side of some doctors that like to say that “everything is fine” when “nothing is fine.” We are not trying to appease any doctors here.

Member Think Tank

We have a right to proper help with our pain! Some of us have lost rights in certain states and others are being threatened for the future loss of pain control options. Our rights as Chronic Pain Patients need to be a focus for all of us. Let’s help our legislators understand what we face and make our voices heard!

Admin Think Tank

Recent studies have indicated the intricate role between neuropathic pain and the endocannabinoid system. With our doctors’ hands being tied in helping us with pain control, some EDS/Chiari/Comorbid patients are finding relief with medical cannabis (CBD/THC). Let’s work together to help every patient have as many options as possible, because our legislators don’t understand our pain, we need to help them understand.

Peer Support

We as Chiarians have learned the necessity of educating ourselves and helping one another. Our ability to do so has already revolutionized our fight at an individual level, but we need to be proactive in order to accomplish real change on a larger scale. From our right to competent medical care to our rights to proper pain management options, we cannot expect people to fight for our rights unless we are first willing to fight ourselves. Please stay tuned to this area with calls to action and updates. All of us need to come together so we CAN make a real difference! Individually we have small voices that are easy to dismiss, but together we are strong, loud, and fierce!

Online Support Group Meetings

We have a right to proper help with our pain! Some of us have lost rights in certain states and others are being threatened for the future loss of pain control options. Our rights as Chronic Pain Patients need to be a focus for all of us. Let’s help our legislators understand what we face and make our voices heard!

Members Think Tank

Recent studies have indicated the intricate role between neuropathic pain and the endocannabinoid system. With our doctors’ hands being tied in helping us with pain control, some EDS/Chiari/Comorbid patients are finding relief with medical cannabis (CBD/THC). Let’s work together to help every patient have as many options as possible, because our legislators don’t understand our pain, we need to help them understand.